Available in English and Spanish
Sickle Cell Disease
The Faces of Our Children
From the Minority Coalition
United Food & Commercial Workers Union
Nearly 50 to 80,000 African-Americans, and a very much smaller number of whites, have sickle cell anemia, a genetic disease in which red blood cells become stiff, sticky and misshapen. In a "sickle cell crisis," which can occur for a variety of reasons or for no apparent reason at all, the sickle-shaped cells can block blood vessels, causing severe pain in the chest, back, abdomen and joints. Repeated crises will eventually damage the kidneys, the heart and blood vessels, and other organs. One in ten children with sickle cell disease will have a stroke before they are fifteen; another ten percent have "silent" strokes, which nonetheless impair their school abilities and other functioning.
Despite advances in treatment, this is in danger of becoming a "forgotten disease," with government funding for research and public information declining to a trickle compared to a few years ago. This program examines the devastating impact of sickle cell disease on these young people and their families and caregivers. It will be an important tool for increasing awareness in the community and among healthcare and social service providers in community clinics, hospitals, and other settings.
Spanish language version available: Anemia Falciforme
20% Discount if ordering both versions on VHS or DVD: $240
Purchase $175 DVD
Order No. QA-305
ISBN (DVD) 1-57295-957-6
"Succeeds in driving home the message that more needs to be done to find a cure. Recommended as an introduction to the disease, this program would benefit patient education collections and public library collections." MC Journal
Awards & Conference Screenings
Silver Award, Health Sciences Communications Assn.
International Symposium on Pediatric Pain
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