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Autism: Warming to its Cold Embrace
A personal journey into a child's autism diagnosis with filmmaker Robert Parish.

Gambling Boys
Looks at the growing problem of gambling addiction among teenagers.

Healthlink Curriculum for Nurses & DVD
A curriculum for nurses and nursing students about the needs of children and adults with disabilities who are medically fragile.

Principles & Practices of Building Community Special
Seven sessions of training providing skills and education on some of the most important concepts of community inclusion.

Ten Commandments of Communicating With People With Disabilities
This top selling video is used to train staff and community about disability etiquette.

Toward Daylight
To kindle the hope necessary for the living to face, and move on from, the pain and loss of suicide, five people tell their stories.

 

 



 

 

 

Rare
A film by Maren Grainger-Monsen and Nicole Newnham

RARE follows an extraordinary mother in a race against time to find a treatment for her daughter's rare genetic disease.

When Donna Appell learned that her infant daughter Ashley had an extremely rare genetic disease that would kill her in thirty years, she set out to track down every person in the world with Hermansky-Pudlak Syndrome (HPS). Realizing that no one was going to help cure "just one child," Donna forms an advocacy group and travels throughout the US and Puerto Rico to gather as many patients as possible who suffer from HPS, which includes albinism, blindness, a bleeding disorder and often a fatal pulmonary fibrosis. By the time Ashley turns twenty, Donna, under insurmountable odds, has achieved something incredible: the advocacy group she started is now in the hundreds and the NIH has agreed to start a clinical trial.

Filmed with intimate access over three years by award-winning filmmakers Maren Grainger-Monsen and Nicole Newnham, RARE follows Donna Appell and her daughter Ashley into the world of clinical research, patient advocacy, and through the course of a NIH clinical trial as Ashley falls in love for the first time.


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